A Secret

The days have been full with my boys and I bounding from one event to the next, quick in our step, sure in ways.

Nathan, after three months in school, has grown into his own. He is much more confident, now. In fact, he has joined “circle time,” a social activity, with the rest of his classmates. He’s also transitioned to a full day program which lasts until 3pm. Every day, when I pick him up from school, he greets me with some sort of project in his hand, one that he had made especially for me. Usually, it is some sort of creative art project or botany book he’s made. He speaks of his classmates, and his friends issues (and, so it begins), and tells me how much he likes school.

Justin, after 8 months of therapy, is beginning to show major progress in his right arm and hand. He now knows how to knock over blocks, spin a wheel toy, and roll a toy car with his right side. He’s also showing improvement in his gross motor skills as he combat crawls (in his own left-dominant way), and stands and takes steps more often (although his right ankle is still pronating, which makes it difficult for him to stand upright very well on his own). He’s also emulating sounds that we make like when we count. Most of the time, he’s just babbling in his own language. As for his physical health, he’s grown about 2.5 inches in the last month, after about 8 months of no growth.

For those who are kind enough to ask us about our little boys, and about Justin and his progress, I tell them they are doing fine. I recite the points of progress my boys have made. I tell them, “Yes, they’re good.”

Here I am, three days before Christmas Eve of 2008, having enjoyed many endeavors that seemed nearly impossible last year, and still, almost afraid to proclaim my joy in all that my family and I have been allowed this season. We’ve braved the malls together, studied the towering Christmas trees with their sparkling twinkle lights and ornaments. Justin and I shared a cheesecake. Nathan had his first movie theater experience with Loi. We’ve been to restaurants, weddings, and parties.

I feel selfish for not claiming how happy I am when others are struggling to put food on the table, and providing the necessities for their children this year; when others may not have their children with them, and I do.

I suppose this is one of the hazards of having a child with a health condition that places such uncertainty in our lives. Well, it is for me, anyway. It’s like I’m still afraid to rejoice in fear of something…happening. Hana kara, I think it is. So, I keep to myself, and get upset when Loi starts getting excited about anything.

Take it as it comes, one day at a time. Breathe in, breathe out. Just keep breathing…

And, I pray to remind myself to be thankful, and to maintain my belief in miracles (that do happen!).

Thank you for checking up on us. We wish you all a Merry Christmas, and may peace be with you.

3 Responses to “A Secret”

  1. Ngocy Says:

    Hi there! I’m always so happy to hear and see how beautiful your family is and I wish I was there to see them grow!

    I don’t remember if I gave you this site, but it’s my friend Adam for his babies. http://hopeful-hearts.org/

    I’ve told you about them but the other site was down.

    Anyway, I love getting your updates!
    Love y’all - Ngocy

  2. Cathy Says:

    I’m so happy to hear you are doing well and your boys are growing and doing all the things little boys should do. I understand the fear - it can be overwhelming, but don’t give in to it. Try to enjoy the craziness. And enjoy the wonder of little boys at Christmas time…

    Merry Christmas to you and yours… from Cathy, Merv and Ben - and Angelboy Marek.

  3. Megan Says:

    Your boys are doing just awesome! It’s so nice to read about their progress. I just knew Nathan would start to love school..

    You deserve to feel happiness and give thanks for what you have this season. You all have been through a lot…as you said, take each day as it comes. Enjoy the present!

    Merry Christmas! I hope you all have a week full of fun and love! oxooxx

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