Comments on: Leaky valve and heart transplant talk http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/ (actually, three Trans and a Cao) Tue, 07 Sep 2010 18:22:08 +0000 http://wordpress.org/?v=2.7.1 hourly 1 By: Lisa http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/comment-page-1/#comment-2389 Lisa Wed, 17 Sep 2008 01:57:13 +0000 http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/#comment-2389 Jen, I just did my rotation at the Duke Adult Congenital Cardiology Clinic. I have met middle aged men and women who had survived BT shunts (even 1 who had it done by Blalock himself!) and Fontans, and now are living normal adult lives, walking 3 miles a day, with families and healthy children of their own. I know that there is more to Justin than just his heart, however I can't help but think of you and Justin when I am in this clinic. Love, Lisa Jen,
I just did my rotation at the Duke Adult Congenital Cardiology Clinic. I have met middle aged men and women who had survived BT shunts (even 1 who had it done by Blalock himself!) and Fontans, and now are living normal adult lives, walking 3 miles a day, with families and healthy children of their own. I know that there is more to Justin than just his heart, however I can’t help but think of you and Justin when I am in this clinic.

Love,
Lisa

]]> By: Mark http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/comment-page-1/#comment-2224 Mark Thu, 04 Sep 2008 19:47:57 +0000 http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/#comment-2224 Our son Billy was born on Jan 22, 2008 with heterotaxy. He had multiple heart defects and received a heart transplant in Atlanta on Feb 21, 2008. He is doing great. You can read our story and see pictures at http://caringbridge.org/visit/babyjohnson1. Billy has many of the same heterotaxy issues Justin has: asplenia (Billy has polysplenia with functional asplenia - he has many small spleens that do not work), possible malrotation of the bowels, no gall bladder, bronchomalacia. The heart tranplant is probably the best thing that happened to him - we were headed down the Fontan path also but Billy also had complete heart block and a birth heartrate of 50 bpms so we had to transplant. Our son Billy was born on Jan 22, 2008 with heterotaxy. He had multiple heart defects and received a heart transplant in Atlanta on Feb 21, 2008. He is doing great. You can read our story and see pictures at http://caringbridge.org/visit/babyjohnson1. Billy has many of the same heterotaxy issues Justin has: asplenia (Billy has polysplenia with functional asplenia - he has many small spleens that do not work), possible malrotation of the bowels, no gall bladder, bronchomalacia. The heart tranplant is probably the best thing that happened to him - we were headed down the Fontan path also but Billy also had complete heart block and a birth heartrate of 50 bpms so we had to transplant.

]]> By: Megan http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/comment-page-1/#comment-2222 Megan Thu, 04 Sep 2008 19:46:06 +0000 http://fourtran.com/2008/09/04/leaky-valve-and-heart-transplant-talk/#comment-2222 That is all heavy stuff to process. It's hard not to want to look ahead because we all want to spend a lifetime with these special little babies. 20 years from now, let's hope there's an even better option and Justin can live 100 more years! That cake is adorable. Elijah would love the lion! Looks like Justin is ready to dig in. :) xoxoxo That is all heavy stuff to process. It’s hard not to want to look ahead because we all want to spend a lifetime with these special little babies. 20 years from now, let’s hope there’s an even better option and Justin can live 100 more years!

That cake is adorable. Elijah would love the lion! Looks like Justin is ready to dig in. :)

xoxoxo

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