Comments on: Leaky Valve Revisited http://fourtran.com/2008/03/04/leaky-valve-revisited/ (actually, three Trans and a Cao) Sat, 06 Sep 2008 02:00:41 +0000 http://wordpress.org/?v=2.2.1 By: Shannon http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-664 Shannon Fri, 07 Mar 2008 06:23:02 +0000 http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-664 I agree. Even though the valve is worse the fact that he is "tolerating it well" as my cardiologist says is still a very good sign. They are only learning how kids with CHD's develop and how their growing hearts respond to the 3-norwood-Glenn-Fontan surgeries. Also, it is a really good thing to question whether or not to go to Fontan asap or not. I have heard people here say that the whole question of whether to do the Fontan or go toward transplant with fewer antibodies is a better approach. I know it is being discussed in cardiology. Keep up your wonderful spirit and I bet Justin is happy to be home. I agree. Even though the valve is worse the fact that he is “tolerating it well” as my cardiologist says is still a very good sign.

They are only learning how kids with CHD’s develop and how their growing hearts respond to the 3-norwood-Glenn-Fontan surgeries.

Also, it is a really good thing to question whether or not to go to Fontan asap or not. I have heard people here say that the whole question of whether to do the Fontan or go toward transplant with fewer antibodies is a better approach. I know it is being discussed in cardiology.

Keep up your wonderful spirit and I bet Justin is happy to be home.

]]> By: Jennifer http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-658 Jennifer Wed, 05 Mar 2008 18:00:07 +0000 http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-658 Thank you for reminding me about this, Megan. You're right, I've seen him worse. He's such a strong boy...still amazes me! Thank you for reminding me about this, Megan. You’re right, I’ve seen him worse. He’s such a strong boy…still amazes me!

]]> By: Megan http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-657 Megan Wed, 05 Mar 2008 16:19:21 +0000 http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-657 There is A LOT to be said for the fact that outwardly, Justin is doing well. The fact that he's content and playing and eating and gaining weight is a VERY good sign. Keep that in mind! And good for you for spreading the word about CHD. This is sooo important. There is A LOT to be said for the fact that outwardly, Justin is doing well. The fact that he’s content and playing and eating and gaining weight is a VERY good sign. Keep that in mind!

And good for you for spreading the word about CHD. This is sooo important.

]]> By: tiu359(andrew) http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-654 tiu359(andrew) Wed, 05 Mar 2008 05:17:28 +0000 http://fourtran.com/2008/03/04/leaky-valve-revisited/#comment-654 So scientific and educational So scientific and educational

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