Comments on: Post Glenn: Day 6 http://fourtran.com/2008/01/24/post-glenn-day-6/ (actually, three Trans and a Cao) Sat, 22 Nov 2008 05:59:06 +0000 http://wordpress.org/?v=2.2.1 By: tiu359(andrew) http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-477 tiu359(andrew) Fri, 01 Feb 2008 04:14:19 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-477 i hope justin is ok :( i hope justin is ok :(

]]> By: Marsha Hansen http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-464 Marsha Hansen Tue, 29 Jan 2008 04:21:14 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-464 Jen - I read you were singing "You Are My Sunshine" to Justin. I sang that to Logan all the time when we were in the hospital for each of his three surgeries. Then, I saw above that Dina sang the same song her her child. (Logan has the words to the song framed in his room.) Our miraculous children with CHD truly are "Sunshine" to all who have the opportunity to meet them and be inspired by them. I think it probably soothes us as much as the little ones. :) Keep singing, praying and believing in miracles. They do happen! Love to the whole family, Marsha Jen - I read you were singing “You Are My Sunshine” to Justin. I sang that to Logan all the time when we were in the hospital for each of his three surgeries. Then, I saw above that Dina sang the same song her her child. (Logan has the words to the song framed in his room.)

Our miraculous children with CHD truly are “Sunshine” to all who have the opportunity to meet them and be inspired by them. I think it probably soothes us as much as the little ones. :) Keep singing, praying and believing in miracles. They do happen!

Love to the whole family,
Marsha

]]> By: Megan http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-462 Megan Mon, 28 Jan 2008 15:04:06 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-462 Beautifully said, Proud Mama! Beautifully said, Proud Mama!

]]> By: Yvonne http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-456 Yvonne Sat, 26 Jan 2008 10:28:23 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-456 Thinking of you guys; you're all so amazing. Love, Yvonne Thinking of you guys; you’re all so amazing.

Love,
Yvonne

]]> By: Shannon http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-454 Shannon Fri, 25 Jan 2008 18:50:35 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-454 I hope Justin is feeling better today. I was sorry to hear about the setbacks but you must always expect the road to be bumpy. I so admire your spirit and perspective. I know Justin is doing the work of healing and coping with all this but you are doing so much to help and him. You are inspiring. I hope Justin is feeling better today. I was sorry to hear about the setbacks but you must always expect the road to be bumpy. I so admire your spirit and perspective. I know Justin is doing the work of healing and coping with all this but you are doing so much to help and him. You are inspiring.

]]> By: Monica http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-452 Monica Thu, 24 Jan 2008 21:39:54 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-452 Still praying. The Glenn is a difficult transition for these little ones and complications are pretty "normal" - but gosh, I'm sorry Justin is having them. And yes, you've got it right -- and this doesn't change even post-fontan and years after everything is going great -- each day with our chd children is its own gift. When people give me a strangely sad look about that, I like to remind them that it's really true of our "healthy" children too. It's just that our chd kids give us more opportunities to remember this. Still praying. The Glenn is a difficult transition for these little ones and complications are pretty “normal” - but gosh, I’m sorry Justin is having them. And yes, you’ve got it right — and this doesn’t change even post-fontan and years after everything is going great — each day with our chd children is its own gift.

When people give me a strangely sad look about that, I like to remind them that it’s really true of our “healthy” children too. It’s just that our chd kids give us more opportunities to remember this.

]]> By: Dina http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-451 Dina Thu, 24 Jan 2008 17:31:00 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-451 What you say is so very true. When our daughter was born with CHD and we found out she had to have the 3 staged surgery, I looked everywhere for stories that would give me hope. Then a wise nurse sat me down and told me that, although I could look for those stories to give me hope, the truth of the matter is is that every child with CHD is different. Every outcome is different, every recovery from surgery is different. And that helps me now as we navigate down this new road. Each child with CHD is a trailblazer all on their own. And Justin is in the process of blazing his own unique trail. Day 6 brought tears to my eyes. When Jilly was recovering from her 1st surgery and waiting for her Glen, I used to sing "you are my sunshine to her". It was the only thing that soothed her. And now, almost 4 years later, she is still soothed by that song when I sing it to her. I continue to hope that Justin keeps moving forward in his recovery and that you continue to be a strong, proud mama. Dina What you say is so very true. When our daughter was born with CHD and we found out she had to have the 3 staged surgery, I looked everywhere for stories that would give me hope. Then a wise nurse sat me down and told me that, although I could look for those stories to give me hope, the truth of the matter is is that every child with CHD is different. Every outcome is different, every recovery from surgery is different. And that helps me now as we navigate down this new road. Each child with CHD is a trailblazer all on their own. And Justin is in the process of blazing his own unique trail.
Day 6 brought tears to my eyes. When Jilly was recovering from her 1st surgery and waiting for her Glen, I used to sing “you are my sunshine to her”. It was the only thing that soothed her. And now, almost 4 years later, she is still soothed by that song when I sing it to her.
I continue to hope that Justin keeps moving forward in his recovery and that you continue to be a strong, proud mama.
Dina

]]> By: Nikki http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-450 Nikki Thu, 24 Jan 2008 17:03:58 +0000 http://fourtran.com/2008/01/24/post-glenn-day-6/#comment-450 Proud Mama--you have every reason to be proud as can be. As always, prayers and thoughts go with you from us. Nikki and Daniel Proud Mama–you have every reason to be proud as can be. As always, prayers and thoughts go with you from us.

Nikki and Daniel

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