Pray for Us
Normally, the days really fly by for me. Before I know it, the sun sets, Loi’s home from work, and we prepare for Nathan’s bedtime routine. Today, time has stood still. Just as I thought things were going to get easier with Justin overcoming his oral aversion, he starts having feeding problems AGAIN! There is something more than GERD (Acid Reflux) going on here…I just have a feeling. It does not make sense that one day he’s fine, and the next he hates drinking. Let me reiterate the dangers of undereating: dehydration, low glucose levels, affects to the brain and body. I don’t want to have to take him into the hospital for this!
Earlier today, I was in good spirits and enthusiastic that the day would get better. It hasn’t. He nibbles on an ounce or less every two hours. It’s time to bring him in to see the GI specialist to rule out any other potential causes for the GERD-lik symptoms. With Justin, I’ve learned that nothing is black and white. But, she’s not taking appointments until February…FEBRUARY! He’ll have his second heart surgery by then. I call his cardiologist–the man with all the answers. He scheduled Justin in for an echo tomorrow to see if there are any new problems with his heart that may be causing his difficulty feeding. And, he’s personally calling the GI specialist to get an earlier appointment for us.
I’m worried…having shallow breaths, butterflies in my stomach, back to square one–hoping for the best but preparing for the worst. Pray for us.